

I’m Karen, and I’m from New Zealand. I’m a breast cancer survivor. This is my story.

I had a lump in my breast which was biopsied (galactocele — a benign cyst found in the breast that’s usually seen in young lactating women). Another lesion was also found in the other breast which was asymptomatic, but after a recheck and biopsy 3 months later, this turned out to be cancer. I was eventually diagnosed with stage 1 breast cancer.

My doctor informed me that I had a 85% 5-year survival rate. I felt fearful, and a little bit perplexed that this had happened, especially since I didn’t have any symptoms. Still, I was a little neutral.

My treatment journey included mastectomy of the affected breast, lymphadenectomy and chemotherapy. Based on my doctor's recommendation and my own instincts, I decided to opt for a prophylactic bilateral mastectomy as I had the BRCA1 mutation. I chose an aggressive approach. I also wanted to avoid radiotherapy. I have to admit, I was slightly anxious after deciding on my treatment plan.

I did experience side effects from treatment, mainly fatigue, hair loss, and mucositis, but I did nothing about it, I just tolerated it. Thankfully, I didn’t face financial difficulties during treatment.

After diagnosis and treatment, I didn't make any permanent lifestyle changes. Cancer really disrupted my life. I had less contact with my parents and intimacy with my partner decreased significantly as well.

Looking ahead, I plan on taking vacations with my family and focusing on work and furthering my education in the next 2 years. I just want to live. My cancer motivated me to try new things even if it was scary and I had to do them alone.

One of my biggest fears has been the thought that I would die and leave my kids without a mother, or that they would have to see me suffer. Truthfully, I have just learned to live with the fear.

Today, I still feel a sense of fear. I feel helpless, nervous and worried that cancer may come back one day. However, I also feel more neutral, accepting things as they come.

To those on their own cancer journey, I'd say: "Do what is right for you, but also trust your doctors. They are the experts."
This patient's story is published and shared with their full consent. Any personal data that can be used to identify the patient has been omitted.
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